Thursday, 7 July 2011

Brave Girl.

Well PM has finally had her fundoplication/G tube operation. She was in hospital for exactly 7 days and coped so well with it! She was amazing. Even when placed into isolation as she had diarrhea, she just seem to bounce back so well after such a big op. I'm so proud of her!
There was no complications and the operation took about 3 and a half hours. Very pleased with how it went and she had the same surgeon that did E's which was even better. Cant say I didn't cry when they put her to sleep using the gas because I did! She fought so hard bless her and even when half asleep was still fighting against it. She's been home since Monday and is loving baby food, even E seems to have finally developed an appetite after another few mths of not eating anything.
E is currently on the waiting list to see an orthopaedic Dr as she has knock knees and at her next clinic appt we think she might get an x ray as her tummy looks quite swollen and they want to make sure everything is ok with it. They had clinic last mth and E had gained a whole kilo in 1 mth! Was very surprised as she hadn't been eating but very pleased and even PM had gained a bit of weight :D
E is still loving nursery, she loves it even more as grandad normally takes her and brings her home. I'm sure she loves grandad more than she loves mummy & daddy haha. We went to the beach a few weeks ago for the day, the girls had a fab time and got spoiled rotten. Hoping to go again next week before the Summer holidays kick in! Then we want to go to the sea life centre at some point, the girls would totally be fascinated with that. They both love animals.
PM had a fantastic 1st birthday and was spoiled rotten, her cake was so beautiful to, mmmmm. Cake :p Its almost been a year now since PM herself was diagnosed! She's now crawling, standing up with help and trying to say words. She's a clever little munchkin. E's speech is also coming along amazingly, she can now count to 20, copy many animal sounds and probably say about 50 words if not more. She went on the donkey ride at the beach and LOVED it, she didn't want to come off even after 2 go's. She must have gone on every kid ride possibly and even went in the sea with mummy. PM loved playing in the sand. It was a really nice day out, cant wait to go again :)
So think that's it really, no meds have been changed recently which is fab news but we have clinic next week so that might change yet but hopefully not. In 6-8 weeks PM will have her tube changed into a mic Key button like E's which is so much easier and better and wont get in the way when she's trying to crawl. Next week she has some stitches out and another blood test, she had one every day while in the hospital poor baby. Her hands are so bruised its horrible. The nurses and Dr's loved her, everyone kept saying how beautiful she was :D We knew most of them from when E was in as she was on the same ward so was quite nice to see them again and we gave them a card and 2 boxes of chocolates when leaving as a Thank You as they where fab. So lucky to get such nice renal Dr's and nurses.





1 comment:

  1. Aw, glad to hear how you are all getting on. Your daughters (and you) are incredibly brave. Sounds like they are happy little girls full of love for life, and I hope they continue to do well. xx

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