The Things We Do For Love.

Well I posted yesterday about shaving my head for Cystinosis Foundation and raising money. Reached the £200 last night so earlier this afternoon my partner cut & shaved all my hair off! We have raised £265 so far and have said if we reach £300 he will let me wax his chest for the very 1st time and if we get to £400 his legs as well. So will be excellent if people keep donating! I really want to cause him some pain haahaa.
E wasn't too sure at 1st but after it was done she came over for a cuddle and slapped my newly shaved head a few times. PM doesn't mind it as long as Im not wearing my glasses at the same time, she doesn't like me in them haha.
Pictures being added of before & after :)

Charity Event.

I have decided to raise some money for Cystinosis Foundation UK by shaving ALL of my hair off if I raise £200+ on my Just Giving page. ALL the money goes directly to the charity using the link I will post.
My hair is currently shoulder length as some of you might know. If it was longer I would have raised the target amount haha. Please, even if you can only spare a few quid it would be greatly appreciated. Your donation could help find the cure my girls greatly need.
Thank you! x-x

http://www.justgiving.com/Jessica-Kemp?ref=nf

Just a little update really. Girls are both good at the moment. Clinic appt went really well, E is now just over 22lb and PM is almost 15lb, both have a grow a little to which is great. E still on 9 meds & PM on 6. There has been talk of Growth Hormones for E when her height starts to level off & PM needs a PH test before she can have her G tube operation/fundo.
Both girls have recently gotten over Viral Infection which really knocked them back, PM a lot more and she took ages to get back to 100%. They both ended up in hospital at the same time so they kindly but them in a double isolation room together which was loads better for us to. PM was sick 16 times in the space of 4-5 hrs hence why she ended up in hospital on IV fluids for a few days. E was the same but she cant be sick thankfully because of her Fundo. Was just nice to get them home eventually, hate the hospital most of the time. They have to watch over you do meds as well which always puts me off and makes me mess up!
PM has her eye examination beginning of March, I'm hoping the crystals still aren't forming in her eyes yet as it's mad enough getting eye drops into E eyes, let alone doing both girls every 1-2 hrs while they are awake! E's speech is coming on slowly to, she can say quite a few words now but still wont eat properly. We've been advised to stop feeding PM solids until after her op as she just vomits after everything except milk & water. I hate feeling that we are starving her but also cant have her being sick too much as this will lead to de-hydration very quickly for her & weight loss which I don't want to see as she's tiny enough at 8 mths old!
Can't win either way which seems to the normal in this household with the girls lol.
Just letting people know I've deleted my Twitter as was getting bored of it & didn't really use it much but I will blog every so often about the girls progress etc.
Just glad since the Viral Infection they have done well & improved some, always makes me happy knowing they are doing really well. Just hope it continues!