Just a little update really. Girls are both good at the moment. Clinic appt went really well, E is now just over 22lb and PM is almost 15lb, both have a grow a little to which is great. E still on 9 meds & PM on 6. There has been talk of Growth Hormones for E when her height starts to level off & PM needs a PH test before she can have her G tube operation/fundo.
Both girls have recently gotten over Viral Infection which really knocked them back, PM a lot more and she took ages to get back to 100%. They both ended up in hospital at the same time so they kindly but them in a double isolation room together which was loads better for us to. PM was sick 16 times in the space of 4-5 hrs hence why she ended up in hospital on IV fluids for a few days. E was the same but she cant be sick thankfully because of her Fundo. Was just nice to get them home eventually, hate the hospital most of the time. They have to watch over you do meds as well which always puts me off and makes me mess up!
PM has her eye examination beginning of March, I'm hoping the crystals still aren't forming in her eyes yet as it's mad enough getting eye drops into E eyes, let alone doing both girls every 1-2 hrs while they are awake! E's speech is coming on slowly to, she can say quite a few words now but still wont eat properly. We've been advised to stop feeding PM solids until after her op as she just vomits after everything except milk & water. I hate feeling that we are starving her but also cant have her being sick too much as this will lead to de-hydration very quickly for her & weight loss which I don't want to see as she's tiny enough at 8 mths old!
Can't win either way which seems to the normal in this household with the girls lol.
Just letting people know I've deleted my Twitter as was getting bored of it & didn't really use it much but I will blog every so often about the girls progress etc.
Just glad since the Viral Infection they have done well & improved some, always makes me happy knowing they are doing really well. Just hope it continues!