What's Been Happening ...

Well finally have some good news. PM should get her OP in the next few weeks as the surgeon has put her on the priority list :) Only thing is her 1st birthday is in 2 weeks and have an awful feeling she might be in hospital for that! If she is the nurses will be enjoying her cake I ordered weeks ago. The Drs & Surgeon is doing the G tube and the fundoplication at the same time as there was a bit of a hoo haa about the fundo not being done by another Dr but her specialist put them straight and said she needed it. They are worried about her growth, said she's missed out on a vital part of it in her 1st year but they are hoping after the operation and she starts gaining weight she might start growing, if not much after 6 months they will consider GH (Growth Hormones). She is 1 soon, weighs 15lb 15oz and is still wearing 6-9mth clothes and some of them are slightly baggy! She is crawling loads now though, so proud of her and love the two front teeth she has. Her Cystagon has also been increased lately due to her level being higher than they like and her phosphate was low again so that has to be upped now to. She did really well at her last blood test and hardly cried, she's just awesome!!
E's doing good so far to, a few of her meds have increased as well like the Cystagon as her level was raised. They changed her micKey button recently as well as the one she had had gotten too big and was rocking too much and causing her some pain and overgranulation. The new one fits nicely at the moment and the Drs took a swab as it looked a bit red and sore and they wanted to make sure there wasnt an infection, plus she likes to touch it a lot. She is also being reffered to Orthapeadic Drs now as she walks funny and might need special shoes at some point. Her weight has dropped slightly since the last clinic, she currently weighs 23lb 10oz. She also has finally been given a Nursery place for a few hours a day every weekday if we wanted, we're just on visits at the moment so she gets use to it and settles in. She loves Stay & Play but we are always there with her so she isnt use to being left alone. I know I will cry when I leave her for the first few times!! She's also doing fab with her speech, taught her loads of new words. Unfortunately her eating habits have subsided. She tends to eat nothing all day so im really thankful she has her milk feed at night, same as PM. E did good on her blood test to, cried but unfortunately she knows whats coming now whereas PM isnt too aware. She got to go out with Grandad after anyway to the park while PM came shopping with mummy & daddy so everyone was eventually happy again!
So its all go go go again, hopefully my next update will be celebrating the fact PM has had her op as is thriving! Fingers crossed.