A few steps backwards...

Just a small post to update really.
We had to take the Little Princess to hospital the other day. After a few days of being sick on literally everything she ate or drank her Dr told us to bring her in. So off we trundled. They weighed her, took her BP and took more blood. Everything came back fine. I wasn't pleased she had lost weight again, she's meant to be gaining now not losing. They didn't need to change any of her meds or give her anything else so after 3 hours of waiting around we where sent home and just told to let her drink plenty of water which we do anyway as it's the only thing she will drink.
I sat at home, wondering why she was being sick again all of a sudden after weeks of doing so well. Was it the rice pudding we tried? Was it the cows milk? It couldn't be the yogurts as she was never sick on them in the 1st place and she'd happily eat a million a day if she could.
Then it hit me. At her last appointment they had given her Sytron again, before she had Sodium Chloride (not sure if the dr wrote it on the prescription by accident or not) and it never bothered her. It wasn't until I noticed she was back on the Sytron that she had started to be sick again. I mentioned this to her Dad. He didnt think it was that, he thought it was the rice pudding that had given her a dodgy tummy or her Cystagon. I suggested we stop using the Sytron for a day to see how it went and low and behold she wasn't sick! She has been off it for 2 days now and today she hasn't been sick at all! When we go back to see her specialist I'll have to let them know and see if there is anything else she can have instead to replace it that wont make her sick. She's at the hospital this week so we can talk to the surgeon about the operation to have the button sorted for her tummy and an acid reflux thing that should help her when she is poorly to not be sick, the slightest cough makes her throw up!
I'm hoping we wont have to wait months for the operation date, Ive spoken to a few parents who have said their child has thrived after having the button inserted into the tummy and it really would do Princess some good. She's just a bag of bones lately and its heartbreaking. Seems some weeks she does fab and then others its back to square one. Its going to be a very long, uphill battle is this but I know she can do it. She's one brave, strong, amazing little girl and has coped so well. Better than me at times haha.
She's a super star ^_^