Trying to remember everything that's happened lately. Mostly it's been good stuff really. Few colds for both girls but have manage to keep them out of hospital!
E had a kidney scan few weeks back, the quality was poor but her dr says her left kidney is damaged and only doing roughly 32% of the work and the right is doing the rest. Nothing can be done about it but its nothing to worry over either really. Dr says she could have been born like that or it's from the Cystinosis/ UTIs she gets. But she's fully potty trained during the day now so not using nappies should help loads in that area. She's also losing weight over the past few months which the Drs are now concerned over. Of she loses anymore they want her to be admitted. She recently had ear infection in both ears to but that cleared up pretty nicely and after some amoxicillin. Her eyes aren't really doing too well lately either, she's been wearing a patch everyday for a few weeks to strength one eye as its really weak and not good! She's back in 2 weeks to be checked again and see if its improved with a patch. Apart from all that she's doing well!
PM has gained some weight thankfully, not growing height wise so discussing the possibility of growth hormones again! She's also bringing up bile/meds lately so we went to see her surgeon who thinks her fundoplication has come undone. She has to have a barium test & x ray soon to check, if it has then it will require another operation to fix it. Shes also finally been referred to physio for her feet. PM turns 3 in 2 months as well. The time sure does fly by! E will be starting school in September & turns 5 in oct!
Well I think that's everything really. One thing after another as usual lol.
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