When It Rains, It Pours.

That's our new motto for this family as when something happens it seems a catalyst for more stuff to happen. Since my last post E has spent a week in hospital with E Coli in her blood. She went in Friday night after being sent home from nursery. Temperature was 39.9 but after some Calpol she seemed to brighten up. A few hours later during bath time she started to shake, go pale and blue and then said she saw monsters. So we rang the renal ward and was told to bring her in for a check up. Few hours later she had been admitted, had bloods done and a urine sample. Find out later she had a kidney & urine infection which caused the E Coli to grow in her blood along with the infections and make her poorly. Took her in in time it seems as they said if it spread she could have ended up in ICU. Luckily she responded well to very strong IV antibiotics and had to have IV fluids too due to being dehydrated. She was in hospital for a week, took them a few days to get her temperate under control! Glad she's home now as its her birthday on Monday and would have hated for her to be in hospital for that. We had to cancel her party though as wasn't too sure when she would be discharged. During her stay she went for a scan to check her kidneys, liver etc. They noticed again she has an enlarged spleen and now they want yearly checks on it so they can keep an eye on it. They aren't sure if its Cystinosis related. In 4 ish months time she has to go back for an x ray on her Kidneys after being injected with some special dye to see if the infections have left any scarring on her kidneys. Hopefully not! She has to stay on the antibiotics for another 8 days but she can have them orally now, well via her G tube and she's having 2 bolous feeds a day. She even ate some yogurt in hospital. Seems staying there helped her achieve a few things as she also started drinking from a cup! The night she came home she did her 1st ever wee in her potty too. So proud of her. E's back in clinic in 3 weeks to double check the infections have gone and that she's doing okay. PM is doing pretty well, being a bit naughty lately but think she felt a little left out with all the attention Emily was getting. Soon as we where all home it was back to normal and they where fighting as usual! Think she's glad her big sister is back though, regardless of the fighting. Regards to other things, the girls Grandma was diagnosed with lung cancer and has been in hospital now for about 3 weeks and their half uncle died recently after a major heart attack and our over is broke! Anyway, have to go as the girls want to play outside so best go grab them lots of warm clothes as its rather cold today.