We visit the renal clinic now every 6 weeks. Just routine stuff mainly and never really expect anything eventful to happen. Until our last appointment there!
All was going normal until they checked PM's blood pressure. High 2 times so they said come back after you've seen the Dr. Anyway. we're in seeing the Dr who now thinks E has asthma and was given an inhaler and they think PM might also develop it as well. Not the easiest thing at 1st trying to get a 3 year old to take her inhaler through a mask! E had to have another chest x ray and she's getting special insoles for her feet soon as her ankles are going in but her knock knees don't look any worse, bad thing is they don't look any better either.
Then they test PM's BP again and still high so we get sent up the ward for manual testing. Cut along story short it was done 8 times until they finally got a lower reading. They even used a Doppler twice on her little foot to listen for the heartbeat! We had to get her asleep before the last test but luckily that didn't take long as she was shattered bless her.
It was quite an eventful visit to say the least. Then the pharmacy didn't give us a mask for E's inhaler so we had to go through the GP and they are pretty useless most of the time but alas, they prescribed her one and gave us another tube with teddy bears on!
She's fine taking it during the day when wide awake but when she's coughing at night and half asleep she isn't keen at all. Think she panics at the thought of having a mask put over her face. I know I would!
PM been referred to eye clinic about her lazy eye. E's back at the bone clinic to get her insoles fitted soon then again in 6mths for another review. PM might be joining her as she walks with a limp and to say she's been walking for a few mths now she is still very unsteady and trips a lot.
E had lost some more weight and PM was about the same so growth hormones still in the pipeline for PM.